About

About Alport Syndrome Foundation Alport Syndrome Foundation is a USA non-profit organization led by and dedicated to the Alport community of patients and families. Our mission is to improve the lives of individuals living with Alport syndrome through education, empowerment, advocacy, and direct investment in research. Our membership, educational resources, events, and programs are free of charge for all individuals affected by Alport syndrome. The Foundation has a volunteer Medical Advisory Committee of nephrologists from around the country, and a Scientific Advisory Research Network comprised of researchers with deep expertise from around the world. We welcome engagement with industry to help advise on pre-clinical and clinical study design from a patient perspective, and to connect industry to research and medical experts in our rare genetic kidney disease.